Dementia resources

For some of the people you look after a degree of confusion, caused by anxiety and agitation, can impact on their day to day life.

Dementia resources for staff

Care Quality Team and Workforce Development Dementia Slides

Introduction to person centred dementia  support  

Person centred dementia support  Tier 2  

Developing and supporting dementia care   Tier 3  

Dementia Resources

Library

A range of short resources that can be used for staff training or to support supervision and appraisal or as resources for providers developing their own training.

*Please note that advertisements played on YouTube links provided in this resource library are in no way endorsed or selected by Leeds City Council and do not reflect the views of the organisation.

Dementia resources for carers in the community 

The Alzheimer’s Society provides guidance for individuals providing care    to people with dementia including the impact of delirium    on people with dementia.

Skills for Care have published a guide giving best practice case studies from domiciliary care employers developing their workforces to support people with dementia. Better domiciliary care for people with dementia  

The University of East Anglia have also produced a guide book   which is free to download and is created for carers who assist a person with a dementia with their personal care. This booklet was developed as part of the Alzheimer’s Society funded Pro-CARE study, which was undertaken at the University of East Anglia.

The booklet is available on the link below, please do share with any family carers, care-home staff or dementia support organisations you feel may benefit from the resource.

There are also a range of resources around developing dementia friendly environments.

In the case of someone’s own home the following are useful for individual and families as well as home care providers to give advice.

Alzheimer's Society; Making your home dementia friendly (PDF)  
 

For dementia in care homes
 

The Open University – design for dementia care videos

The Open University have produced 7 videos in their design for dementia that covers a wide variety of areas                                            

  1. Design for dementia care: Public space  
  2. Design for dementia care: Private space  
  3. Design for dementia care: The Market square  
  4. Design for dementia care: Garden space  
  5. Design for dementia care: Evaluating the success of the design  
  6. Design for dementia care: Refurbishing an existing care home  
  7. Design for dementia care: Looking back on the refurbishment process  
My Life TV - The dementia friendly channel

My Life TV – Stimulating activities, joyful entertainment and calming content for people living with dementia and their carers.                                                                                    

Created by award winning dementia charity My Life Films, My Life TV has programmes and content curated for the cognitive needs of people living with the condition – accessed on tv, tablet, phone or laptop.                                                                                    

It’s a fantastic tool for activity providers and care givers;                                                                                    

  • Keeping residents engaged and occupied with meaningful activities.
  • Enhancing therapeutic provision, supporting exercise and enabling social connection.
  • Providing opportunities for respite or delivery of care.
  • The content can help improve mood, quality of life and care, and help address agitation, anxiety and apathy.

My Life TV partner with many prestigious organisations including the Alzheimer’s Society, NAPA, British Film Institute, British Pathé and more. They also create bespoke quizzes, sing-alongs, chair yoga, music therapy & reminiscence sessions                                                                                     

Arts4Dementia - Empowerment through artistic stimulation

Arts4Dementia is a charity organisation developing arts activities to inspire and re-energise people living with dementia and their carers in the community.                                                          

Arts4Dementia                                                               

Activities - a guide for carers of people with dementia

Alzhiemers Scotland have produced a useful booklet Activities - a guide for carers of people with dementia  However, please note that some of the telephone numbers are for Scottish organisations and therefore are not relevant for those working outside of Scotland.                                                                                                                                                                                                                                                    

Delirium or dementia?

Rapid changes in someone's dementia may be a sign of infection or delirium. 

The Social Care Institute for Excellence (SCIE) provides a guide to delirium External li

The guide is extremely useful in identifying and supporting people with delirium and it is linked to a short interactive web resource. External 

Delirium is a temporary condition caused by a number of factors such as infections that can make these symptoms worse or cause such symptoms in people who are otherwise healthy and orientated.

Unlike dementia, the onset of delirium may be sudden and temporary. It is treatable if recognised early and appropriate treatment provided.

People with dementia are at greater risk of developing delirium. Sudden changes should always be taken notice of. These should be recorded and passed to a senior member of staff.

Caring for a person with confusion

Dealing with people suffering from confusion on a day to day basis is very similar for both dementia and delirium. Failure to recognise the difference between them could mean the person doesn't get the correct treatment.

Is the confusion new or does it seem worse than normal

Check the individual’s records to see if any deterioration has been noted over the last hours or days.

If there is a medical emergency, ring 999. 

If it is not a medical emergency

Make a note of other changes identified in the record such as:

  • are they eating and drinking normally for them?
  • do they have a temperature?
  • do they have a cough or a cold?
  • are they constipated?
  • are they in pain and does the care plan tell you how that particular person lets you know they're in pain?
  • do they have a bladder infection? Are they going to the toilet more often, or less often?

If the person gets severely ill ring the resident's GP and request a visit (or call 111). Always provide as much information as possible about what has happened, what has changed, how has the person deteriorated, and how the resident now appears.

Understanding the person

Always check care plans and make sure you understand the person. Some things to help you with this can be to see:

  • how they tell you when they're in discomfort or pain
  • what is normal for this person
what their preferences are for how care is provided
Caring for a resident

You should:

  • stay with the resident or check on them regularly
  • reassure them
  • approach them gently
  • provide an explanation to the resident and carers of any activity or procedure you are carrying out using short, simple sentences
  • come down to their level
  • never stand over people
  • use a calm voice
  • never shout at the resident
  • always treat them with dignity
Be aware of the surrounding environment

You should consider

  • a consistent calm daily routine
  • using regular and repeated verbal clues as to the time of day. This could include using coloured table cloths to distinguish between breakfast, lunch and dinner
  • eliminating, if possible, unexpected and irritating noise such as alarms
  • maintaining good lighting levels in all rooms appropriate to the time of day and check that TV's are visible and not reflecting bright sunlight
  • providing settings and objects that may be familiar

Swallowing difficulties for people with dementia

NHS England have published guidance for supporting people who may have swallowing difficulties in dementia.